{"id":9390,"date":"2020-04-27T00:31:00","date_gmt":"2020-04-27T00:31:00","guid":{"rendered":"https:\/\/www.blackbaud.com\/customer-stories\/congenital-hyperinsulinism-international"},"modified":"2025-01-22T22:14:27","modified_gmt":"2025-01-23T03:14:27","slug":"congenital-hyperinsulinism-international","status":"publish","type":"customer-story","link":"https:\/\/www.blackbaud.com\/customer-stories\/congenital-hyperinsulinism-international","title":{"rendered":"Congenital Hyperinsulinism International"},"content":{"rendered":"\n<section class=\"hero hero--customer-story\" id=\"hero--customer-story-block_f04c0988133154a6484026912ceb342f\">\n    <div class=\"hero--customer-story__container has-image\">\n        <div class=\"hero--customer-story__container-diamonds d-none d-md-block\">\n            <div class=\"diamond-top__gradient\"><\/div>\n            <div class=\"diamond-top__green\"><\/div>\n        <\/div>\n        <div class=\"container\">\n            <div class=\"row\">\n                <div class=\"col-9 col-lg\">\n                    <ul class=\"breadcrumbs list-unstyled\">\n    <li><a href=\"https:\/\/www.blackbaud.com\"><i class=\"fa fa-home\"><\/i><\/a><\/li>\n            <li><a href=\"\/customer-stories\">Customer Stories<\/a><\/li>\n            <\/ul>                <\/div>\n            <\/div>\n            <div class=\"row\">\n                <div class=\"col-md-5\">\n                    <div class=\"hero--customer-story__container-content\">\n                        <p><span class=\"green-eyebrow\">Congenital Hyperinsulinism International<\/span><\/p>\n<h2>CHI Steps Up Social Giving Presence with Turnkey Peer-to-Peer Fundraising Solution<\/h2>\n                    <\/div>\n                                            <div class=\"hero--customer-story__container-download\">\n                            <a href=\"https:\/\/www.blackbaud.com\/wp-content\/uploads\/2023\/07\/chi_cs_final-1.pdf\" target=\"_blank\"><i class=\"fa-solid fa-arrow-down-to-bracket\"><\/i> Download PDF<\/a>\n                        <\/div>\n                                    <\/div>\n            <\/div>\n        <\/div>\n                            <div class=\"hero--customer-story__container-image\">\n                        <img loading=\"lazy\" decoding=\"async\" width=\"250\" height=\"250\" src=\"https:\/\/www.blackbaud.com\/wp-content\/uploads\/2023\/07\/chi_logos_outlined-250.jpg\" class=\"img-fluid wp-post-image\" alt=\"\" srcset=\"https:\/\/www.blackbaud.com\/wp-content\/uploads\/2023\/07\/chi_logos_outlined-250.jpg 250w, https:\/\/www.blackbaud.com\/wp-content\/uploads\/2023\/07\/chi_logos_outlined-250-150x150.jpg 150w\" sizes=\"auto, (max-width: 250px) 100vw, 250px\" \/>                    <\/div>\n                    <\/div>\n    <div class=\"hero--customer-story__vertical-region\">\n        <div class=\"hero--customer-story__vertical-region-diamonds\">\n            <div class=\"diamond-bottom__gradient\"><\/div>\n            <div class=\"diamond-bottom__blue\"><\/div>\n            <div class=\"diamond-bottom__white\"><\/div>\n        <\/div>\n        <div class=\"container\">\n            <div class=\"row\">\n                <div class=\"col-12 d-md-flex\">\n                                        <div class=\"hero--customer-story__vertical-region__vertical\">\n                                                    <img decoding=\"async\" src=\"https:\/\/www.blackbaud.com\/wp-content\/uploads\/2023\/06\/nonprofits.svg\" class=\"img-fluid wp-post-image\" alt=\"\" \/>                            <span class=\"tag\">\n                                Nonprofit Organizations                            <\/span>\n                                                <\/div>\n                                                                <div class=\"hero--customer-story__vertical-region__region\">\n                        <svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" fill=\"none\" viewBox=\"0 0 24 24\"><g stroke=\"currentColor\" stroke-linecap=\"round\" stroke-linejoin=\"round\" stroke-width=\"2\" clip-path=\"url(#map-pin)\"><path d=\"M12 14a3 3 0 1 0 0-6 3 3 0 0 0 0 6Z\"\/><path d=\"M17.657 16.657 13.414 20.9a2 2 0 0 1-2.827 0l-4.244-4.243a8 8 0 1 1 11.314 0v0Z\"\/><\/g><defs><clipPath id=\"map-pin\"><path fill=\"#fff\" d=\"M0 0h24v24H0z\"\/><\/clipPath><\/defs><\/svg>                                                    <span class=\"tag\">\n                                North America                            <\/span>\n                                                <\/div>\n                                    <\/div>\n            <\/div>\n        <\/div>\n    <\/div>\n<\/section>\n\n<section class=\"customer-story-single__content\" id=\"customer-story-single__content-block_fd859b9cd72e0420eeac76efab421012\">\n    <div class=\"container\">\n        <div class=\"row flex-column-reverse flex-md-row\">\n            <div class=\"col-md-7\">\n                <div class=\"acf-innerblocks-container\">\n<section class=\"lede-quote\" id=\"lede-quote-block_9cc9fe6147e938bd9fa97dd5ca1a28a3\">\n                        <div class=\"longform-content-lede-quote__content\">\n                <img decoding=\"async\" class=\"longform-content-lede-quote__content__image\" src=\"https:\/\/www.blackbaud.com\/wp-content\/plugins\/blackbaud-blocks\/blocks\/acf-longform-lede-quote\/\/img\/quote-rectangle.svg\" alt=\"quotes\">\n                <p class=\"body-medium body-large\"><span class=\"blue-highlight\">We never have a minute to spare with our<br \/>\nlifesaving agenda,<\/span> so having the right tools<br \/>\nis really important.\u201d<\/p>\n            <\/div>\n                            <div class=\"longform-content-lede-quote__name\">\n                Jennifer Schmitt            <\/div>\n                            <div class=\"longform-content-lede-quote__organization\">\n                <i>Associate Director, Congenital Hyperinsulinism International<\/i>            <\/div>\n            <\/section>\n\n<section class=\"lede-paragraph\" id=\"lede-paragraph-block_3c705fbde680665aab07e68b96d85d8e\">\n    <div class=\"lede-paragraph__heading\">\n        <span class=\"tag\">\n            Overview        <\/span>\n    <\/div>\n    <p class=\"body-large\">\n        As Congenital Hyperinsulinism International (CHI) races to raise awareness and funding for\r\ntreatments for a life-threatening disease many people have never heard about, the nonprofit\u2019s\r\nstaff recently adopted an inviting social giving solution that integrates easily with the other\r\nBlackbaud solutions CHI already had in place, saving valuable time.    <\/p>\n    <\/section>\n\n\n<section class=\"wysiwyg wysiwyg-white white-bg\" id=\"wysiwyg-block_ee8d5b8a0000ec6b846787774ca56c34\">\n            <h3>CHI steps up social giving presence with turnkey<br \/>\npeer-to-peer fundraising solution.<\/h3>\n<p class=\"body-medium\">\nThe sooner a baby with hyperinsulinism is diagnosed, the better. <span style=\"font-size: 1.031rem; background-color: var(--bs-body-bg); color: var(--bs-body-color); font-weight: var(--bs-body-font-weight); text-align: var(--bs-body-text-align);\">While the <\/span><span style=\"font-size: 1.031rem; background-color: var(--bs-body-bg); color: var(--bs-body-color); font-weight: var(--bs-body-font-weight); text-align: var(--bs-body-text-align);\">disease can cause blood sugar levels to drop dangerously low, intervention <\/span><span style=\"font-size: 1.031rem; background-color: var(--bs-body-bg); color: var(--bs-body-color); font-weight: var(--bs-body-font-weight); text-align: var(--bs-body-text-align);\">and treatment can help protect children from related brain damage and even <\/span>death. But hyperinsulinism only occurs in an estimated 1 in 25,000 to 50,000 births in most countries, and that rarity creates its own set of challenges.<\/p>\n<p class=\"body-medium\">\nUnderstanding those challenges on a very personal level, a dynamic group of parents banded together in 2011 to create Congenital Hyperinsulinism<br \/>\nInternational with three main tenets: awareness, support, and research. Beyond the board of directors and countless volunteers, the small nonprofit is run by a New-Jersey-based staff of three and a half. Their to-do list includes managing a worldwide hyperinsulinism patient registry, organizing two annual conferences, and supporting a cycling team in the Million Dollar Bike Ride put on by the Penn Medicine Orphan Disease Center.<\/p>\n<p class=\"body-medium\">\n\u201cWe never have a minute to spare with our lifesaving agenda, so having the right tools is really important,\u201d Associate Director Jennifer Schmitt said.<\/p>\n    <\/section>\n\n\n<section class=\"wysiwyg wysiwyg-white white-bg\" id=\"wysiwyg-block_7c65d70e20594e27821f8c353210bc3e\">\n            <h3>A Social Giving Solution with Flexibility and Style<\/h3>\n<p class=\"body-medium\">A promising new technology in their toolbox is JustGiving\u00ae from Blackbaud\u00ae,<br \/>\nwhich has supported CHI\u2019s cycling team in the Million Dollar Bike Ride. CHI was one of the first Blackbaud customers to adopt JustGiving, and Schmitt said she appreciates its aesthetic appeal. \u201cI\u2019m not a graphic designer, but I have a background and love for graphic design, and I really liked that side of JustGiving\u2014the practical side of setting it up and how we could change our logos, customize, and use our brand. I thought that was really great and better than what similar platforms offered.\u201d She also appreciated the solution\u2019s ability to translate images and setups for different formats, especially mobile phones, \u201cthe most important format to<br \/>\nget.\u201d<\/p>\n<p class=\"body-medium\">\nIn their first year using JustGiving, the 12 cyclists on the \u201cRaring to Go for CHI\u201d team collectively raised more than $13,000 for research. Cyclists included<br \/>\nparents, siblings, health care professionals, and other CHI supporters. Each cyclist could create a personal fundraising page, as could others who took on<br \/>\nseparate athletic challenges, including a marathon and triathlon.<\/p>\n<p class=\"body-medium\">\n\u201cHaving those families get the word out to loved ones, whether they be friends or family, has become a really important part of sharing our story and<br \/>\nraising funds,\u201d Schmitt said.<\/p>\n<p class=\"body-medium\">\nWhen the Million Dollar Bike Ride announced it would transform into a virtual event in 2020 due to the COVID-19 crisis, she felt like the organization\u2019s<br \/>\nsuccess with JustGiving gave CHI a head start. \u201cThis is so easy. It\u2019s turnkey,\u201d<br \/>\nshe said.<\/p>\n    <\/section>\n\n<section class=\"pull-quote pull-quote__top-bottom white-bg\" id=\"pull-quote-block_2fb95268f4085085a0b6e296b898f3be\">\n    <div class=\"pull-quote__wrapper\">\n                <div class=\"pull-quote__wrapper-content\">\n            <div class=\"pull-quote__wrapper-quote\">\n                <h4 class=\"h5\">\u201cI\u2019m not a graphic designer, but I have a background and love for graphic design, and I really liked that side of (JustGiving from Blackbaud)\u2014the practical side of setting it up and how we could change our logos, customize, and use our brand.\u201d<\/h4>\n            <\/div>\n            <div class=\"pull-quote__wrapper-name\">\n                Jennifer Schmitt            <\/div>\n                            <div class=\"pull-quote__wrapper-role\">\n                    Associate Director                <\/div>\n                                        <div class=\"pull-quote__wrapper-organization\">\n                    Congenital Hyperinsulinism International                <\/div>\n                    <\/div>\n    <\/div>\n    <\/section>\n\n\n<section class=\"wysiwyg wysiwyg-white white-bg\" id=\"wysiwyg-block_5e375ee1c8d0726b9b7d96aa9d5397b0\">\n            <h3>Integration to Help a Small Nonprofit Get Things Done<\/h3>\n<p class=\"body-medium\">\nShe also sees the value of the seamless integration with cloud-based solutions CHI previously had in place: Blackbaud eTapestry\u00ae for donor<br \/>\nmanagement and Blackbaud Merchant Services\u2122 for payment processing.<\/p>\n<p class=\"body-medium\">\nAdoption of JustGiving was fairly simple and \u201ca huge timesaver\u201d that<br \/>\nshe knew at the outset \u201cwould make my life so much easier\u201d with the consolidation of accounting, reports, and donor lists in one place. \u201cAll the<br \/>\ndonor information went right into my database,\u201d Schmitt said.<\/p>\n<p class=\"body-medium\">\nShe had already come to rely on the efficiencies of Blackbaud eTapestry,<br \/>\nwhich makes it easy to run queries and set up user-defined fields\u2014for<br \/>\nexample, distinguishing between donors, patients, and healthcare<br \/>\nprofessionals. With Blackbaud eTapestry\u2019s drag-and-drop templates, she can<br \/>\nmake an email campaign look \u201creally great\u201d on her own without spending too<br \/>\nmuch time on it.<\/p>\n<p class=\"body-medium\">\nThat way, she can move on to the next item on her to-do list as she helps<br \/>\nfamilies across the world unite in facing a disease that many never heard<br \/>\nabout until it impacted them.<\/p>\n<p class=\"body-medium\">\n\u201cThat\u2019s something that\u2019s shared with rare disease organizations, or any small nonprofits,\u201d she said. \u201cEverybody\u2019s wearing a lot of hats and trying to play a<br \/>\nlot of roles.\u201d<\/p>\n    <\/section>\n<\/div>\n                                    <div class=\"customer-story-single__content-download\">\n                        <a href=\"https:\/\/www.blackbaud.com\/wp-content\/uploads\/2023\/07\/chi_cs_final-1.pdf\"><i class=\"fa-solid fa-arrow-down-to-bracket\"><\/i> Download PDF<\/a>\n                    <\/div>\n  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